Google
Trusted Resources: News & Events
Latest announcements and gatherings
New York Senate Bill 1839 and Assembly Bill 6430—Sickle Cell Disease Detection and Education Program
Hello Partners in Advocacy!
The Sickle Cell/Thalassemia Patients Network (SCTPN) on behalf of all of the other sickle cell disease (SCD) community organizations are circulating a letter to the Chairs of the Assembly and Senate Health Committees for support of the Sickle Cell Disease Education and Detection bill S1839.
The letter requests that the state leaders dedicate $750,000 to educating health professionals and the public about sickle cell trait and disease. It will also provide funding to community-based organizations in the Fiscal Year 2023-24 to expand public outreach and education efforts.
SCTPN are inviting organizations who care about rare and chronic diseases and improving the quality of life for those who are impacted to sign on to the letter linked below.
If your organization supports the Senate Bill S1839 (Sanders), email “Yes, I Support” to Ginger Davis [email protected] or Ashley Thompkins at [email protected].
Organization and Individual names will be listed on the letter. Please email your organization logo to include with the letter.
+myBinderRelated Content
-
The 14th Annual Sickle Cell Disease Research & Educational Symposium and 43rd National Sickle Cell Disease Scie...The Symposium is an exciting three-day m...
-
Hydroxyurea effectiveness in children and adolescents with sickle cell anemia: A large retrospective, population-bas...The clinical efficacy of hydroxyurea in ...
-
Severe Blood Shortage Due To Coronavirus OutbreakThe American Red Cross now faces a sever...
-
Cannabinoid receptor-specific mechanisms to alleviate pain in sickle cell anemia via inhibition of mast cell activ...Sickle cell anemia is a manifestation of...
-
Richard Lottenberg, MDDr. Richard Lottenberg is a faculty memb...
-
Today’s Faces of Sickle Cell Disease: Jennifer NsenkyireJennifer Nsenkyire, who is originally fr...
-
My Story: “Any Day Without Pain Is a Good Day!”At 32 years young, Shakir Cannon is not ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.